Rare Disease Foundation to hold the 'Relay of Love' festival at the Seoul City Hall Civic Auditorium on the 28th

[Kuki Health] The Korean Foundation for Rare Diseases (Chairman Kim Hyun-joo) will hold the 'Relay of Love' festival on the 28th at the B1 floor of the Seoul City Hall Civic Auditorium to celebrate its 2nd anniversary this year, including a concert and promotion and application for genetic counseling services.

This event is designed to convey hope to patients and families with rare diseases under the slogan 'Relay of Love - Hope for patients and families with rare diseases', and is organized as a festival in which citizens can participate together.

The Relay of Love event will be held from 11 am to 8 pm on the 28th at the B1 floor of the Seoul City Hall Civic Auditorium, including the Relay of Love concert performance, promotion of genetic counseling service support project and application for genetic counseling, a commemorative event for the publication of 'Relay of Love' Part 3, professional genetic counselor education, provision of information on nurturing and scholarships (professional genetic counseling graduate course), photo exhibition, and booth-specific programs such as the 'Man♡Man♡ Sharing Movement' fundraising campaign.

In particular, the 2nd anniversary ceremony, which starts at 6 pm, includes congratulatory speeches from Seoul Mayor Park Won-soon (read by Policy Officer Kim Chang-bo), National Assembly member Moon Jeong-rim, and Seoul Medical Association President Lim Soo-heum, as well as a report on the results of the Korean Rare Disease Foundation's genetic counseling support project, an explanation of the background to the publication of Relay of Love Part 3, and awards for the Relay of Love Award, Certificate of Appreciation, and Special Award.

In addition, congratulatory performances will be held by various rare disease patients and families, including STORY OF Exit 4, which consists of patients with retinitis pigmentosa.

The Korean Foundation for Rare Disease, which prepared this event, is a public interest corporation established in 2011 with the approval of the Ministry of Health and Welfare to convey hope to patients and families with rare diseases. Currently, it is implementing a genetic counseling service support project for patients and families with rare diseases.

Genetic Counseling is a support service that provides 'medical and genetic' information to patients with rare diseases (mostly genetic diseases) and family members at risk of the disease about what the rare disease is, the symptoms and course of the disease, and how it is inherited. It is a special professional medical service process that supports patients and their families to have a sufficient understanding of the disease through counseling on socio-psychological problems and to adapt to their situation by autonomously deciding on their direction.

Through this process, you can understand accurate information related to the disease from clinical genetics experts, and this can help you make the best decisions for yourself and your family.

Kukmin Ilbo Kuki News Reporter Song Byeong-gi songbk@kukimedia.co.kr