Rare Disease Foundation to Hold 'Relay of Love' Festival at Seoul City Hall on the 28th

[Kuki Health] The Korea Rare Disease Foundation (Chairman Kim Hyun-joo) will hold the 'Relay of Love' festival on the 28th at the B1 floor of Seoul City Hall, Citizen's Hall, to celebrate its 2nd anniversary this year. The festival will include a concert, promotion of genetic counseling services, and application reception. This event is themed 'Relay of Love - Hope for Rare Disease Patients and Families' and is designed to give hope to rare disease patients and families. It will be structured as a festival in which citizens can participate. The Relay of Love event will be held from 11 am to 8 pm on the B1 floor of Seoul City Hall, Citizen's Hall, and will include various programs at each booth, such as the Relay of Love concert, promotion of genetic counseling service support projects, acceptance of genetic counseling applications, a commemorative event for the publication of 'Relay of Love' Volume 3, professional genetic counselor training, information on fostering and scholarship programs (graduate courses in professional genetic counseling), photo exhibitions, and the 'Man♡Man♡ Sharing Movement' fundraising campaign. In particular, the 2nd anniversary ceremony, which starts at 6 pm, will include congratulatory messages from Seoul Mayor Park Won-soon (read on his behalf by policy officer Kim Chang-bo), National Assembly member Moon Jung-rim, and Seoul Medical Association Chairman Lim Soo-heum. There will also be a report on the results of the Korea Rare Disease Foundation's genetic counseling support project, an explanation of the background of the publication of Relay of Love Volume 3, and the awarding of the Relay of Love Award, Commendation Plaques, and Special Awards. In addition, there will be congratulatory performances by STORY OF Exit 4, which consists of patients with retinitis pigmentosa, and other rare disease patients and their families. The Korean Foundation for Rare Disease, which prepared this event, is a non-profit corporation established in 2011 with the permission of the Ministry of Health and Welfare to give hope to rare disease patients and their families. Currently, it is implementing a genetic counseling service support project for rare disease patients and their families. Genetic Counseling is a support service that provides 'medical and genetic' information to patients with rare diseases (mostly genetic diseases) and family members at risk of the disease, including what the rare disease is, the symptoms and course of the disease, and how it is inherited. It is a special professional medical service process that helps patients and their families understand the disease and make autonomous decisions to adapt to their situation through counseling on social and psychological problems. Through this process, they can understand accurate information related to the disease from clinical genetics experts, which can help them make the best decisions for themselves and their families. Kookmin Ilbo Kuki News Reporter Song Byeong-ki songbk@kukimedia.co.kr